I’ve hesitated to share this video because I don’t like making people sad. But people have been asking, so here’s our current reality. We always knew this day was coming but didn’t expect it to happen so quickly. We didn’t expect Sadie to lose most of her speech in just a few months. Most children with Sanfilippo Syndrome lose the ability to speak around age 6. So I suppose we’re lucky that Sadie held onto her speech for a year longer than expected. That was likely because she was enrolled in a
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